Saturday, October 31, 2009
Now that Leightyn is able to sit up on her own we graduated from a baby bath tub to a tub seat. I wondered what she would think about the water and well I should have known she would love it! She spent 30 minutes in the water yesterday, as you can tell from her raisin toes in the picture! At first she was a little unsure when her splashing and kicking caused the water to get in her face but by then end she could care less and was cracking up at herself when she really got to kicking and splashing. The only downside is now I must figure out a way to keep her from trying to drink the water. I have a feeling I will be fighting with her over who needs a bubble bath now for the rest of my life, and I dont think I will be the one winning the relaxing bath any time soon!
Thursday, October 29, 2009
Tuesday, October 27, 2009
The Pleasant Valley Varsity Cheerleaders & The Spartan Sparkles: Persons of the Week - ABC News
Wednesday, October 21, 2009
Tuesday, October 20, 2009
Monday, October 19, 2009
Sunday, October 18, 2009
Saturday, October 17, 2009
Friday, October 16, 2009
Sunday, October 11, 2009
Saturday, October 10, 2009
Friday, October 9, 2009
Tuesday, October 6, 2009
G- Growing Too fast
H- Hard Working
Y- You Just Want to Squeeze Her
E- Easy Going
N- Normal Baby
O- Only Child
L- Little Girl
L- Loves Music
E- Extra 21st Chromosome
Monday, October 5, 2009
Leightyn was born at 2:18 AM after 3 easy pushes. The doctor laid her on my chest and she was the most beautiful thing I had ever laid eyes on. Billy cut the cord and when he did the Doctor was saying something about it being really thin and gristly, and explaining how they normally are thicker and have a plump jelly like covering. Thinking back now I guess this should have been the first sign that things were going to be a little different than we had imagined. They took Leightyn after Billy cut the cord because she had not started breathing or cried yet, from here things get a little crazy and blurred. Next they were calling for NICU (neonatal intensive care) and respiratory STAT. Suddenly about 10 nurses and doctors came running into the room. I was obviously a little confused and really really scared. All I could do was squeeze my Moms hand and I told Billy to go over there and be with our baby. They were using the bag to breath for her, they kept tapping on her and talking to her, saying "come on", and timing everything. I heard one of the nurses say "Are you thinking what I'm Thinking?". All I was thinking when I heard this was that my baby didn't make it. I probably watch too much Greys Anatomy but it felt like one of those whispered moments between the doctors right before they deliver really bad news or call time on a patient. Little did I know Leightyn had started breathing on her own and right before they were going to rush her out of room. It turns out what they were thinking was that she had Down Syndrome. My nurse came over to me and said, "your daughter has some of the characteristics of a baby with Down Syndrome", plain and simple that was all she said. They got Leightyn wiped down, weighed (6 lbs), measured (19 1/2 in), and bundled before finally handing her to me. When I held her this time I studied her face and I knew, she had those beautiful almond shaped eyes. They told us they would need to do some blood tests to find out for sure, I hoped they would come back normal, but deep down I already knew they would not. I did not cry right away I was determined to stay strong for my baby, my husband, and family at least for a few more hours. I really didn't know what to think or feel at first, I guess I was in shock. I never imagined when I walked into the hospital that evening that I would be delivering anything but a "perfect" and healthy baby girl. To be continued..........
Leightyn was good at keeping secrets! We had to do more than one ultrasound to find out the sex b/c she refused to get in a good position for us! This was killing me since Billy would not let me shop for anything until we knew what we were having :) I did not have the prenatal testing done because the results were not going to change our mind about having our baby, we were going to love her no matter what!! Since I was only 24, and none of my ultrasounds or appointments showed anything to be concerned about, the doctor didn't press the issue. We had no idea Leightyn would be chromosomally enhanced!
Here are some basic FACTS about Down Syndrome!
Sunday, October 4, 2009
Many times I wonder
As I go throughout the day,
Can you tell I'm special,
When you look my way?
Can you tell I'm different,
When you look into my eyes,
And see the tiny Brushfield spots,
That sparkle when I smile?
When you see my chubby little hands,
The line so deep and long,
Can you tell that I’m unique,
When I sign to you in song?
Can you tell by looking at my face,
So sweet and full of joy,
I’m as precious as they come,
Mommy’s Little Boy?
And Daddy’s Little Girl When she twirls all around,
Can you tell when she's dancing,
In her ballerina gown?
Can you tell by my expressions,
By the way my body moves,
By the little things that differ,
From the children known to you?
Can you tell that I’m a blessing,
Sent from up above,
To live here on this earth with you,
And fill your world with love?
Can you tell that I have feelings,
The same as all of you,
Sometimes I laugh,
sometimes I cry,
My heart is human, too.
Can you tell that I am worthy?
Do you see me less than whole?
I hope you can appreciate,
My selfless perfect soul.
My love is unconditional,
Loyal ‘til the end.
Can you tell that I am capable,
Of being your best friend?
Can you tell that just like other kids,
I love to run and play.
But, at times I need to do these things, In my special way.
Don’t judge from my appearance,
There are differences, it’s true.
But, when you think about it,
Can you tell I’m just like you?
by Becky S. Bowen
I found this in the etsy profile of a Mother with a child who has Down Syndrome!
Saturday, October 3, 2009
We met my best friend at House of Japan a birthday tradition. It is a Japanese Steakhouse where they cook your food in front of you. Leightyn was a little unsure what to think of the huge flame and the heat when the chef lit the cook surface but she wasn't bothered at all by the clanking of his utensils as he tossed them into the air doing tricks. This was surprising since noises like that have been known to startle or scare her in the past. She spent lunch first eating herself, then cooing/talking to Tiffany, and she was a huge fan of the orange sherbet they bring out for dessert. I somehow managed to lose one of Lay Lay's new little fall outfits from her bag, but other than that lunch was great and I was more than full when we left!
We went back home so Leightyn could get another nap and bottle in before heading out to meet Tiff again for The Gallery Hop , another birthday tradition. I considered getting a sitter for Leightyn since we had already had a busy day and weren't supposed to meet Tiff until 6. We decided to give taking her along a try. I love the Gallery hope with all the people watching, music, and beautiful art and was hoping she would like it too! The Fall weather has really set in around here so we bundled Leightyn in layers and put her cute little dog hat on her. She loves music so was a happy happy baby as we walked up and down the streets with all the live musicians out on the sidewalk. I even managed to push the huge stroller in and out of several of the shops and galleries without having to accidentally purchase anything which was a huge feat! That area is so far from being handicap (stroller) accessible, the side walks are horrible, shop doors have huge steps to get into them, and the shops and aisles are so tiny, not to mention the large crowds on nights like tonight making it even more of a challenge. Nest time I think we will try the baby carrier so we can just strap her to my belly or Billy's back!
We ended the night with some more food, Z Pizza! Honestly I was hoping for something a little more fun since one of the best parts about the Short North area is its unique eateries. However with the baby this seemed the easiest and least crowded option and was right on our way back to the car. To my shock it had its own uniqueness, everything is made with fresh organic ingredients and the pizza is cooked on bricks over fire. There were the classics as well as some yummy twists, I had the BBQ Chicken, Billy had the trusty pepp and chz, Tiff went with the Greek, and Leightyn even had a piece of crust. The pizza not only tasted amazing but it was super affordable our bill was $8.95 for 2 large slices of pizza, a beer, and a coke! The Short North is the only Z Pizza location in Ohio but there were several in other states and it is definitely somewhere we will be frequenting! I love eating so this is a topic you will probably hear a lot about!
Now to my point of the day! People were talking about Leightyn being a doll at lunch and then tonight all people kept saying was how cute that baby in that hat is, how happy that baby is, and how awake and alert that baby is at this late hour (and no it really wasn't THAT late, it was only 9 when we left for home). It got me thinking about something I am sure every parent of a child with Down Syndrome has heard, "They are the happiest/sweetest little kids!" or some similar variation of that. It is one of those things people always say to you when they find out you have a baby with DS. I know they have the best of intentions and really think they hope it will somehow make you feel better about the diagnosis. This is one of the biggest myths about Down Syndrome. Okay, today yes, Leightyn was the happiest sweetest little baby, but that is not always the case. I will prove that in another post here this month I am sure. Leightyn's good mood tonight had nothing to do with her diagnosis and a whole lot to do with her taking 2 long naps, and eating all 4 of her 8 oz bottles as well as cereal, a fruit, and veggie. Then add in some good music, lots of people, lights, plus new surroundings to check out and you get one happy baby! I wonder when these people make these comments do they know she has DS? Can they tell by looking at her? If they know is her very happy mood tonight feeding into their assumption that our children really are sweet and happy all the time? The answer to those questions I will never know. One thing I do know is that Leightyn like any baby in this world has both good days and bad. She definitely makes being a Mommy easy most of the time and really is an easygoing and happy person but that, I am sure, has nothing to do with Down Syndrome, and everything to do with the fact she is my daughter. She must get that from me :)
Friday, October 2, 2009
Thursday, October 1, 2009
I am joining in the 31 for 21 so I will be writing 31 new posts in the Month of October to Celebrate my daughter Leightyn and everyone else who was born with designer genes! I hope to give some facts, dispel myths, and most importantly share stories of hope! I am only ten months into this journey that has become my crazy beautiful life and I am so glad to be able to share it with you all. For tonight a picture of my inspiration!